137 Perspective matters in recovery Table 2: [continued] and says, “oh yeah, thank you.” And then quickly closes the door. But somewhere deep down I feel: there still is love in that little moment. Family member on meaningful contact I feel that she’s doing her job, but also she’s doing, that’s my impression of her... [stammering] with her heart. Family member, on the way a professional takes up her role toward her father Professionals I took this to the interview to show to you. It is a farewell present I got from her [...] She has written a message on it, that I was always there anyway. Even when things were very bad for her. Professional learned how the person with SMI experienced her care as unconditional I can’t stand being called a liar and cheater [sighs loudly]. I have to remind myself then, I am dealing with people with an illness here, because I sometimes feel like biting their head off, you know. [laughs] Hello there! I’m human too. Professional on feeling personally denounced, and having trouble to remain in a problem oriented role 1.2 Role oriented at addressing problems Persons with severe mental illness R: When I had the second collapse and I had the second admission here. Then it became pretty clear to me, I’m not going to live without medication, it’s too dangerous. Person with severe mental illness attributing the role of patient to himself Moderator: So do your social worker and your partner also work together? Participant: She is present at every treatment. Because I also sometimes conceal things. Like attempts to end it, which I’ve done several times. Person with mental illness on role of his partner, from focus group Participant 1: How do you like all this support you get? Participant 2: Well, all that attention, in a way it is a burden on you. It takes time, and it does something to your self-image. You do want to be seen as a full human being. Participant 1: I recognize that too yes. Participant 2: It’s quite difficult I find, to keep seeing myself as normal. And not just as a patient. Focus group with persons with severe mental illness, on struggling with patient role Family R: [that I] as brother lost influence on my brother, because he was no longer himself, he wouldn’t listen like normal. A normal conversation had become impossible. I remember that from one of those first times. Family member on the moment interaction changed and he lost his role as an advisor to his sibling with severe mental illness My father comes over to my place almost every day. And when he does, he is totally inactive. He sits and he sits. But expects me to make his cup of tea, which he could just make himself. Things like that... And to be honest, it’s too much for me sometimes. But I don’t say anything about it, because then I’m like: what else should this man do, who else does he have? Daughter accepting more because of her father’s vulnerability R: Everything was always discussed with me. From top to bottom. And I always offered my opinion. And that was always listened to very carefully. But I also valued listening to the medical knowledge available. Of course I have nothing to say about that. Family member and legal representative explicitizing own expertise/role and professional role [continued on next page] 7
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