128 Chapter 7 Interviews and focus groups with service users, their families and health professionals The recovery-oriented interview propagated by (among others) van Os et al. served as a basis for the interview (what happened, strengths, weaknesses, future hopes or goals), facilitating the respondents in telling a personal, detailed, in-depth narrative on their (role in) recovery from severe mental illness (32). The topic guide was pilot tested among interviewers and co-interviewers and probed for more detail when dealings with the other parties within the recovery triad were touched upon (see supplement: Topic list). We invited persons with severe mental illness and families to reflect on dealings with parties currently or formerly part of the triad. Similarly, we allowed professionals to reflect on the index-case, but also on other cases they had been involved in. Interviews were held at home or at an institution location according to respondent’s preferences by pairs of a researcher trained in qualitative research (KW, MdK, MLr or TB) and an expert by experience, who both identified as such. All interviews were voice-recorded and transcribed verbatim. Field notes were audiorecorded after the interview by the interview team. As a member check of what we took from the interviews, we shared a narrative summary of the interview with the respondent afterwards and asked for feedback. In the focus groups, after a round of introductions, we asked participants to write or draw up a collage of what they hoped for the future for themselves and to others in the triad, and who helped and/or hindered in achieving this. Then, we started an exchange using their collages as a starting point, and encouraged dialogue when the conversation focused on taking on helping and hindering roles and interactions within triads. Focus groups were held at an institution location and moderated by MdK and an expert by experience, were voice-recorded, and transcribed verbatim. Analysis The nature of our work was explorative, so we conducted an inductive reflexive thematic analysis according to Braun and Clarke (25, 26). We aimed to develop themes and their interrelation describing the experienced collaboration between triad members, taken from the different perspectives of persons with severe mental illness, family and professionals. Analysis took place at the level of individual accounts, so no comparisons between accounts of related individuals (e.g. a person with SMI and their network member) were made (33). Developed themes referred to respondents’ views on themselves and others, and either the relationship between themselves and another member of the triad, or between the other two members of the triad, as visualized in figure 1. Our analysis was at a semantic level, and we took a critical realist position. Since the individual interviews were conducted by multiple interviewers, we drew on the Qualitative Analysis Guide of Leuven (QUAGOL) to organize the first stage of analysis
RkJQdWJsaXNoZXIy MTk4NDMw