Heleen Eising

92 Chapter 5 REFERENCE LIST 1 Punt MC, Teela L, Fischer K, Bloemenkamp KWM, Lely AT, Driessens MHE, Pekel L, Haverman L, van Galen KPM. A qualitative study on the experiences of haemophilia carriers before, during and after pregnancy. Haemophilia. 2021; 27: e675-e82. 10.1111/hae.14396. 2 James AH. Women and bleeding disorders. Haemophilia. 2010; 16 Suppl 5: 160-7. 10.1111/j.13652516.2010.02315.x. 3 Punt MC, Schuitema PCE, Bloemenkamp KWM, Kremer Hovinga ICL, van Galen KPM. Menstrual and obstetrical bleeding in women with inherited platelet receptor defects-A systematic review. Haemophilia. 2020; 26: 216-27. 10.1111/hae.13927. 4 Shankar M, Lee CA, Sabin CA, Economides DL, Kadir RA. von Willebrand disease in women with menorrhagia: a systematic review. BJOG. 2004; 111: 734-40. 10.1111/j.1471-0528.2004.00176.x. 5 De Wee EM, Knol HM, Mauser-Bunschoten EP, van der Bom JG, Eikenboom JC, Fijnvandraat K, De Goede-Bolder A, Laros-van Gorkom B, Ypma PF, Zweegman S, Meijer K, Leebeek FW, Wi Nsg. Gynaecological and obstetric bleeding in moderate and severe von Willebrand disease. Thromb Haemost. 2011; 106: 885-92. 10.1160/TH11-030180. 6 Biss TT, Blanchette VS, Clark DS, Bowman M, Wakefield CD, Silva M, Lillicrap D, James PD, Rand ML. Quantitation of bleeding symptoms in children with von Willebrand disease: use of a standardized pediatric bleeding questionnaire. J Thromb Haemost. 2010; 8: 950-6. 10.1111/j.15387836.2010.03796.x. 7 James AH. Von Willebrand disease in women: awareness and diagnosis. Thromb Res. 2009; 124 Suppl 1: S7-10. 10.1016/S0049-3848(09)70151-3. 8 Rodeghiero F, Tosetto A, Abshire T, Arnold DM, Coller B, James P, Neunert C, Lillicrap D, VWF ISj, Perinatal/Pediatric Hemostasis Subcommittees Working G. ISTH/SSC bleeding assessment tool: a standardized questionnaire and a proposal for a new bleeding score for inherited bleeding disorders. J Thromb Haemost. 2010; 8: 2063-5. 10.1111/j.15387836.2010.03975.x. 9 James AH. Heavy menstrual bleeding: work-up and management. Hematology Am Soc Hematol Educ Program. 2016; 2016: 236-42. 10.1182/asheducation-2016.1.236. 10 Yeung K, McGrath C, Howse K, James P. Management of patients with elevated Self-BAT scores or other bleeding symptoms: Updated overview for primary care practitioners. Can Fam Physician. 2022; 68: 494-9. 10.46747/cfp.6807494. 11 Cnossen MH, van Moort I, Reitsma SH, de Maat MPM, Schutgens REG, Urbanus RT, Lingsma HF, Mathot RAA, Gouw SC, Meijer K, Bredenoord AL, van der Graaf R, Fijnvandraat K, Meijer AB, van den Akker E, Bierings R, Eikenboom JCJ, van den Biggelaar M, de Haas M, Voorberg J, Leebeek FWG, consortium S. SYMPHONY consortium: Orchestrating personalized treatment for patients with bleeding disorders. J Thromb Haemost. 2022. 10.1111/ jth.15778. 12 Deforest M, Grabell J, Albert S, Young J, Tuttle A, Hopman WM, James PD. Generation and optimization of the self-administered bleeding assessment tool and its validation as a screening test for von Willebrand disease. Haemophilia. 2015; 21: e384-8. 10.1111/hae.12747. 13 Punt MC, Blaauwgeers MW, Timmer MA, Welsing PMJ, Schutgens REG, van Galen KPM. Reliability and Feasibility of the Self-Administered ISTH-Bleeding Assessment Tool. TH Open. 2019; 3: e350-e5. 10.1055/s-0039-3400483. 14 Atiq F, Mauser-Bunschoten EP, Eikenboom J, van Galen KPM, Meijer K, de Meris J, Cnossen MH, Beckers EAM, Laros-van Gorkom BAP, Nieuwenhuizen L, van der Bom JG, Fijnvandraat K, Leebeek FWG, Wi Nsg. Sports participation and physical activity in patients with von Willebrand disease. Haemophilia. 2019; 25: 101-8. 10.1111/hae.13629. 15 Atiq F, Fijnvandraat K, van Galen KPM, Laros-Van Gorkom BAP, Meijer K, de Meris J, Coppens M, Mauser-Bunschoten EP, Cnossen MH, van der Bom JG, Eikenboom J, Leebeek FWG, Wi Nsg. BMI is an important determinant of VWF and FVIII levels and bleeding phenotype in patients with von Willebrand disease. Am J Hematol. 2019; 94: E201-E5. 10.1002/ajh.25499. 16 Hansen RS, Vinholt PJ. Prevalence of Bleeding Symptoms in Denmark Using the Patient-administered Bleeding Assessment Tool (self-BAT). Haemophilia. 2023; 29: 564-71. 10.1111/hae.14728. 17 Eising HP, Punt MC, Schermer T, Leemans JC, Bongers MY. The ISTH-BAT score and outcomes after endometrial ablation in women with heavy menstrual bleeding. Haemophilia. 2023. 10.1111/ hae.14872. 18 James PD. Women and bleeding disorders: diagnostic challenges. Hematology Am Soc Hematol Educ Program. 2020; 2020: 547-52. 10.1182/hematology.2020000140. 19 Rahman S, Khan FS, Samin KA, Afridi N, Ahmed M. Efficacy of Oral Tranexamic Acid Versus Combined Oral Contraceptives for Heavy Menstrual Bleeding. Cureus. 2021; 13: e19122. 10.7759/cureus.19122.

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