PDA Development for Oropharynx Cancer | 161 6 Quotes Adjustments • HNS 2 (F, 51y): “It is complex and difficult to determine which treatment is best for this group, also for us as physicians. You want to give the treatment that does the least harm, but up until now it remains unclear which treatment has least side-effects. Therefore, it is important to know patients’ preferences and to inform them about both options, so that the patient, together with family or friends, and of course with our guidance, can make a choice in the treatment that suits him or her best.” • RO 7 (F, 50y): “My ultimate goal is to ensure that patients do not have to undergo multimodality treatment and therefore experience as few side effects as possible. With surgery, there is a potential risk for the need of adjuvant radiotherapy either to the neck or the primary site in case of inadequate margins or involvement of multiple lymph nodes or extra capsular spread. It is important that the patient is aware of this as part of treatment decision making.” • Patient 7 (F, 62 years): “When I received the diagnosis and information about treatments, I could not remember a thing that was said. All the appointments were on the same day, and everyone was using such difficult language. It was also because of the stress, but it was also just too much for me, and therefore I did not feel prepared for the treatment.” • The results of the literature search, counseling materials and interviews were used to develop the first draft of the PDA. • Simultaneously the first prototypes were designed. • CE 1 (F, 54y): “Unfortunately, medical terminology is still widely used during counseling. This is often complicated information and can create patient anxiety and therefore make them reluctant to ask questions. It is so important that treatments are explained in understandable language, and preferably visually assisted to improve intelligibility for every patient.” • Rewriting and concision of text (language level B1)[18] • Replacing text with graphics, animations and videos • Recording of videos in which survivors tell about their experiences • Information on nerve damage during a neck dissection was added
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