156 | Chapter 6 Table 2. Themes observed in interviews Themes Patients Physicians General results interview 1) Fear of death 2) Overwhelmed by information 3) Want to start treatment as soon as possible 1) Difficult to relay important information without giving too much information 2) Make clear that survival is relatively good 3) State treatment possibilities Survival 1) Most important, but since it is quite similar for both treatments it is not decisive in decisionmaking 1) As far as we now know from research, both treatments give similar oncological outcomes Side-effects 1) Initially mostly focused on shortterm side effects 2) After learning long-term sideeffects they are viewed as most important for decision-making 3) Most feared is persistent swallowing problems 4) Most patients in hindsight missed information about dental problems, hair loss and risk of radiation after surgery 1) Multimodality treatment gives more and more severe side effects, so unimodality treatment is preferred 2) Differences in the long term should be explained to patients for decision-making 3) Specialists mainly explain sideeffects of their own treatment modality Side-effects management 1) Most focused on short-term side effects such as pain (painkillers) 2) Not familiar with the support options provided by paramedics and that this is also possible after completion of treatment 1) Important to explain side effects and their management such as treatment by SLPs and dieticians SLP= Speech-Language-Pathologists Phase 3: Beta testing of the Feasibility Experts Eighteen experts evaluated the last version of the PDA. Negative aspects were that the total duration to go through the PDA was rated as quite long (mean 21 minutes, range 12-45). Positive were the layout, structure of the website, and the addition of videos and graphs. All experts (n=18) found the PDA feasible and a valuable addition to regular counseling. They rated this version of the PDA a 7.9 (median, range 7.5-8.5).
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