Marco Boonstra

75 Patients (n=24) Professionals (n= 37) Age, mean ±stdev (range) 68.5±16.0 (28-90) Age#, mean±stdev (range) 46.0±12.0 (28-63) Male sex, n (%) 17 (71) Male sex, n (%) 9(24) Educational levelρ, n (%) Health setting and profession, n (%) Low education 11 (46) General Practices 16(43) Middle education 11 (46) General practitioner 10(27) High education 2 (8) Specialized nurse 4(11) Living situation, n (%) Educators 2(5) Alone 16 (67) Hospital care 21(57) With partner 8 (33) Nephrologist 5(14) Nationality n (%) Specialized nurse 5(14) Dutch 20 (83) Dialysis nurse 6(16) Non-native Dutch 4 (17) Social worker 1(3) Type of treatment, n (%) Method of data collection, n (%)** General Practice (CKD-stage 1-3) 7 (29) General Practices Ambulatory CKD-care (CKD-stage 3-4) 7 (29) In-depth interview 6(11) Dialysis/transplantation (CKD-stage 5) 10 (42) Focus group discussion 11(30) Co-morbidities, n (%) Hospital care Diabetes 11 (46) In-depth interviews 8(22) Hypertension 12 (50) Focus group discussions phase 2 12(32) Cardiovascular Diseases 8 (33) Focus group discussions phase 3 9(24) Other 8 (33) None 2 (8) Years of kidney disease, mean±stdev* 11.7±16.1 Health literacy (AAHLS) Total HL score, mean±stdev (range) 21.1±3.0 (14-26) Total Funct. HL+, mean±stdev (range) 6.8±1.5 (3-9) Total Comm. HL+, mean±stdev (range) 7.6±1.4 (4-9) Total Critical HL+, mean±stdev (range) 6.7±1.7 (4-10) Relatives present during the interview n (%) Yes 12 (50) No 12 (50) n = the number of participants. ρ = Low = only primary or secondary school; mid = middle-level tertiary education; high = university or university of applied sciences, according to Statistics Netherlands (CBS)[48]. * = Two participants from GPs were not included in this calculation, since they were only aware of having proteins in the urine, but unaware of having damaged kidneys. During the interviews, we followed their level of awareness and knowledge. For example, if patients said they believed something was not applicable for them, we did not ask further questions. HL = health literacy. Funct = functional, Comm = communicative. Maximum possible AAHLS scores: total: 30, funct: 9, comm: 9, critical: 12. # = calculation based on n=36, because of missing data. ** = As some professionals were included in two phases of data collection the n and % exceeds the n of total participants. Table 3.1 Baseline characteristics of patients and of health care professionals

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