50 Study CKD-pop (N) Country Design Measure (%LHL) Q Target mechanism Intervention objectives and target group Approach of intervention Main results Axelrod et al., 2017(77) 4-5 (D) (81) USA Pilot-study with focus groups Adapted Brief HL1 (40-73%) - Utilization of care P-P interaction Social context Inform and educate patients Facilitate patient involvement Customize to context Strengthen social support My Transplant Coach, app where patients can enter essential demographic and clinical information. The app generates estimates of prognosis and uses videos to explain different transplant and dialysis treatment options. Facilitates easy sharing with professional. + lower acceptability of app in patients with limited Internet experience* + benefits for all literacy levels* + confidence in conversation + transplant knowledge* + informed decision making* Robinson et al., 2015(80) 5(T) (170) USA Pilot RCT study sTOFHLA1 (28%) - Self-care management Social context Inform and educate patients Support behavior change of patients Customize to context SunProtect, digital education on personal skin cancer risk and sun-protection actions for patients, to use in the hospital. Information offered with videos, spoken language (English and Spanish), and culture-sensitive patient stories. + sun-protection knowledge + awareness* + sun-protection use* + better results in patients with LHL* Ameling et al., 2012(81) 4-5 (D) (48) USA Mixedmethod study REALM1 -18% - Utilization of care Social context Inform and educate patients Facilitate patient involvement Customize to context Video and handbook for patients. Subjective and evidence-based information about positive and negative features of different treatment options to support patients and family in decisionmaking. + refined content, based on feedback + comprehension of the aid + satisfaction + quality of the aid CKD-pop = population of interest by CKD-stage (1,2,3,4 or 5), when applicable specified for transplant (T) or dialysis (D). N= number of participants in study, 1 = functional HL measure, 2 = communicative HL measure, 3 = critical HL measure Q = study quality: + high quality study, +/- moderate quality study and - low quality study, based on quality assessment. Table 2.3 Continued
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