130 RESULTS Background characteristics The 19 patients had a mean age of 69.1, 36.8% were female. Their mean total HL score was 20.7±2.9 and critical HL score was 6.2±1.6, indicating that many patients experienced problems to search for and reflect on information, a prejudice for self-management. Among the 22 professionals, mean age was 42.6, 95.5% was female. Details on the background characteristics are in Table 4.1. RESULTS FOR THE PATIENT INTERVENTION Step 2: Logic Model of Change To start, we formulated five preliminary objectives aiming to improve knowledge and competences of CKD patients with LHL. Additionally, we decided upon a preliminary objective aiming to strengthen the patient’s social network. Within the objectives aiming to improve the knowledge and competences of patients, we thought there was an important role of HCPs, and we therefore added multiple determinants to improve competences of HCPs to support patients with LHL. Table 4.2 shows the preliminary objectives and determinants. In the interviews, the experiences of patients receiving ambulatory care and dialysis treatment largely differed, indicating that one intervention for both groups would insufficiently meet their needs and problems. To illustrate, patients with mild to severe CKD mostly recognized they could benefit from the objectives aiming to improve awareness and knowledge, and to become equipped to self-manage at home. In contrast, patients with kidney failure on dialysis believed it was more important to receive support to maintain selfmanagement changes on the long-term. Dialysis patients were more outspoken that they needed help from the social network to be able to self-manage. A summary of the patient experiences, which during step 4 of the IM protocol led to the decision to target the intervention to ambulatory setting, is in table 4.2 as well. Additionally, the experiences indicated missing determinants. We formulated nine new determinants aiming to improve understanding of CKD risks, to enable both patients and HCPs to discuss self-management better during consultations,
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