109 11. What did you do yourself to overcome your difficulties? a. Did you have additional help? Next, we would like to discuss how you perceive the way you were supported to deal with your kidney disease and to contribute to your treatment. 12. Did you seek or receive additional information on CKD or your challenges? a. How did you perceive this information? b. Did you encounter any problems to use the information? 13. Do you discuss your CKD and treatment with others? a. With health care professionals? b. With people you know (relatives etc.)? 14. Where do significant others help you with in your treatment? To finalize, we have two more questions. 15. Do you have additional topics you would like to discuss about your CKD or the treatment? 16. Do you have advices what health care professionals can do better? Supplementary file 2B In-depth interviews with patients The aim of the second round of in-depth interviews was to retrieve experiences of patients with LHL with the support HCPs offered to optimize their selfmanagement and if they encountered any barriers with these strategies. Additionally, we asked some questions on the development of CKD. The final questions are below: Based on the interviews with 28 patients we had before, we would like to discuss some topics that were mentioned by patients a lot. We would like to hear your opinions on them and how you are supported in these topics by health care professionals. 1. We first will give you a set of card with topics that were mentioned a lot by patients. These topics are all about ‘having CKD’ or ‘the treatment of CKD’.
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