101 ‘For a long time I had no symptoms of CKD, until a point that I almost needed dialysis. That was so unexpected, I did not think of treatment options.‘ > Do your recognize these stories of patients? > How is this possible? What is the role of the health care professional? > Do you have recommendations / strategies to improve this situation? To conclude we have a question on social support: 30. What are your experiences with the role of a social support network in patients with limited health literacy? > How do you currently involve the social network in the treatment? > Do you have ideas what could be improved? 31. Did we miss anything, do you have something on your mind that is relevant for our research? Supplementary file 1C: Focus group discussions Below you find questions for the focus group discussions with HCPs during the third phase of the research, which aimed to identify their personal needs to support patients with LHL better. Opening question 1. From earlier interviews and focus group discussions, we learned how difficult it can be to recognize patients with limited health literacy. Can you think of factors from both the patient and health system perspective that make it difficult to identify patients with limited health literacy? > Do you have suggestions what health care organizations to identify them better? > What do you like to learn yourself? Access to health care Introduction: from earlier interviews and focus groups, we learned that patients not always see the risks of symptoms and seek help in time. We also learned that they sometimes do not have the financial resources or competences to seek additional professional help if needed.
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