Marco Boonstra

100 my treatment and life is, are less discussed‘ > Who would like to respond? What do you think of this? > Is this a bad thing? Is it important to change that? > Do you have ideas for strategies to improve that situation? > Do you feel responsible for this kind of problems? Where does your responsibility end? 27. ‘Professionals have studied very long. Therefore, I let them decide what is needed for me, for example when it comes to deciding on treatment options. I will mainly listen!‘ > Who would like to respond? What do you think of this? > Is this a bad thing? Is it important to change that? > Do you have ideas for strategies to improve that situation? > Do you feel responsible for this kind of problems? Where does your responsibility end? Other experiences To conclude this focus group discussions, we have some additional questions. These relate to the trajectory of the patient within the health system and the role of the social support system / background of patients. 28. Patients with kidney problems, potentially receive care from multiple settings over time. First in the general practice, then the nephrology department and dialysis/transplant care. > Do you see differences between patients with adequate and limited health literacy in their kidney disease care trajectory? > What does that mean for your role as a health care professional? > Do you have ideas for strategies to improve the trajectory for patients with LHL? During the patient interviews, we notices that in earlier stages patients are often not very aware of CKD or do not feel much urgency. Two exemplary quotes are: 29. ‘From what the general practicionist told me, I thought almost every older person has some kidney problems. I thought: it can’t be that bad!‘

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