| 98 Appendix B. All survey questions. People with dementia Informal caregiver Demographics Demographics What is your age? What is your age? What is your gender? What is your gender? What is your living situation? What is your living situation? What is/was the highest occupation (or the most senior role) you have had? What is/was the highest occupation (or the most senior role) you have had? What is your postal code? What is your postal code? What is your country of birth? What is your country of birth? What cultural background do you identify with? What cultural background do you identify with? Diagnostic Process Role as caregiver Do you have a primary care partner? What is the relationship between you and the person with dementia? When did you first notice difficulties with for example language, memory, thinking or behaviour? Are you the primary care partner? When did you first seek medical help for this? Think about the support and care you currently provide to the person with dementia. If the situation remains the same, how long do you think you could continue providing this level of support and care? Who initiated this medical help? Do you have any specific medical or mental health condition(s) that could affect your role as a care partner? How long did you have to wait for your first appointment? Diagnostic Process What was the diagnosis you received? When did you first notice difficulties with for example the person with dementia’s language, memory, thinking or behaviour Where was this diagnosis given? When was the first time that medical help was sought for this? Who gave this diagnosis? Who initiated this medical help? When were you given this diagnosis? How long did he/she have to wait for the first appointment? In my opinion, the waiting time between seeking help and receiving the diagnosis was: What was the diagnosis he/she received? Looking back on the diagnostic process, did receiving a diagnosis help you? Where was this diagnosis given? Has the support after the diagnosis helped you deal more effectively with your concerns? Who gave this diagnosis?
RkJQdWJsaXNoZXIy MTk4NDMw