| 96 Appendices Appendix A . Recruitment strategies and samples per country. Each country used their own mix of recruitment strategies to maximize inclusion rates. Each country’s recruitment strategies are described in more detail below followed by an overview of the demographics of people with dementia and informal caregivers in each country. Australia utilized national listings of individuals and organisations involved in diagnosis and postdiagnostic support and recruitment registries. These included diagnostic clinics, medical specialists and peak bodies. Canada recruited via e-mails and e-newsletters. Online flyers/posters were shared on social media (Facebook, Twitter) and with various associations that distributed them to their members (e.g., social work or nursing associations). Recruitment e-mails were sent to educational institutions (e.g., provincial medical school; family medicine department), longterm care facilities, a provincial ‘Alzheimer plan’ community of practice group, and provincial Alzheimer Societies. In addition to the above, health and social care providers referred patients/clients and informal caregivers to our research project. The Netherlands recruited via the memory clinic, the local dementia case managers and social media channels (LinkedIn). In addition, the informal caregiver panel of alzheimer Netherlands received an invitation to complete the survey. Poland recruited via memory outpatient clinics, psychiatric and geriatric wards of their clinic, meetingdem centers, and specialist Alzheimer’s centers. United Kingdom used recruitment flyers/posters/emails which were shared with known contacts and Dementia UK, Alzheimer’s Society, a local Dementia charity a local government ‘Dementia Friendly Cities’ initiative. In addition, Participants were recruited via the register Join Dementia Research. Prior to COVID 19 restrictions recruitment also happened at in-person events.
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