| 82 support with those who were not. Satisfaction with support was based on the question “Has the support after the diagnosis helped you deal more effectively with your concerns?”, and was defined as the answers “Yes, it helped a great deal” and “Yes, it helped somewhat”. If sample sizes were too small to justify Chi-square tests (expected count < 5), descriptive statistics (% satisfaction) were used. Significance levels were set at .05. Results Ninety-one people with dementia completed the survey in Australia (n=23), Canada (n=4), the Netherlands (n=23), Poland (n=36), and the UK (n=5). Three hundred informal caregivers completed the survey in Australia (n=59), Canada (n=49), the Netherlands (n=134), Poland (n=49), and the UK (n=9). The majority of people with dementia (61%) and informal caregivers (85%) completed the survey online, and 67% of the people with dementia received help completing the survey. Table 2 reports demographic characteristics of participants. Informal caregivers most often provided care to their parent (45%) or spouse (43%) and a substantial proportion (29%) experienced mental or physical difficulties. Some informal caregivers (11%) said they could not sustain the current level of care for more than one year. Table 2. Demographic characteristics of people with dementia and informal caregivers. People with dementia (N=91) Informal caregiver (N=300) Age (range) 48 - 93 22 - 94 Gender (% female) 54% 71% Cultural background (% Caucasian) 96% 94% Lives with informal caregiver/person with dementia (%) 66% 47% Has an informal caregiver/is the primary caregiver (%) 76% 83%
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