2 | 25 Authors (Year), Country Study design Timing of data collection Participants (N = sample size), settings and information on diagnosis* Aims Themes (based on data synthesis) MMAT Morgan et al. (2014), Canada A qualitative longitudinal design using individual interviews After the decision on testing Two timepoints: Day of the appointment at the memory clinic Six months after the memory clinic appointment N = 46 SOs of PwMCs, 33 patients were diagnosed with AD, MCI, FTD or VCI, 5 patients had no cognitive impairment, 2 patients had inconclusive results after diagnostic testing To explore rural family caregivers’ experiences in the period leading up to diagnostic assessment at a memory clinic, their hopes, and expectations of the assessment, and their experiences six months following the diagnosis. Feeling of needing to do something Beliefs on the necessity of diagnostic testing Expected outcomes of the decision on diagnostic testing Perception of symptoms The support or wishes of the social network Interaction with HCP Health status of the PwMC 100% of quality criteria met Mukadam, Cooper, Basit & Livingston (2011), United Kingdom A qualitative design using semistructured interviews After dementia diagnosis N = 18 SOs of people with a dementia diagnosis To explore the link between attitudes to help-seeking for dementia and the help-seeking pathway in minority ethnic carers. Expected outcomes of the decision on diagnostic testing Perception of symptoms Interaction with HCP Health status of the PwMC Societal factors 100% of quality criteria met Visser et al. (2019), The Netherlands Observational study complemented with surveys After undergoing testing at a memory clinic N = 136 dyads (PwMC - SO) and N = 41 clinicians, N= 53 patients diagnosed with dementia N= 21 patients with an MCI diagnosis N = 34 patients had normal cognitive function after diagnostic testing N = 28 patients had another or unclear diagnosis Describe the clinician-patient communication in the diagnostic process in memory clinics. Interaction with HCP 100% of quality criteria met Note. HCP= Health Care Professional, MCI = Mild Cognitive Impairment, AD = Alzheimer’s disease, FTD = Frontotemporal dementia , VCI = vascular cognitive impairment, no dementia, MMAT = Mixed Method Appraisal Tool, PwMC = Person with memory complaints, SO = Significant Other, , * = diagnosis as reported by the authors in the original study.
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