| 24 Authors (Year), Country Study design Timing of data collection Participants (N = sample size), settings and information on diagnosis* Aims Themes (based on data synthesis) MMAT Kunneman et al. (2017), The Netherlands A qualitative design using focus groups complemented with surveys After undergoing testing at a memory clinic N = 10 people with a selfreported diagnosis (FTD, MCI, early AD or memory complaints) and their SOs N=1 person who was told not be concerned, no dementia To assess patients’ and caregivers’ views on and experiences with decisions about diagnostic testing for Alzheimer’s disease and receiving test results. Feeling of needing to do something Beliefs on the necessity of diagnostic testing Expected outcomes of the decision on diagnostic testing Interaction with HCP Health status of the PwMC Societal factors The support or wishes of the social network 100% of quality criteria met Lee, Barlas, Thompson & Dong (2018), Singapore A qualitative design using semistructured interviews After decisionmaking process on further assessment resulting from a positive screening result for cognitive impairment N = 5 SOs of people with moderate to severe risk of cognitive impairment, information on further diagnosis not provided To explore caregivers’ experience in decision-making regarding patients’ participation in further diagnostic assessment to confirm cognitive screening results for dementia. Expected outcomes of the decision on diagnostic testing Perception of symptoms The support or wishes of the social network Health status of the PwMC Societal factors 60% of quality criteria met Lohmeyer, AlpinarSencan & Schicktanz (2011), Germany A qualitative design using individual interviews and focus groups After undergoing testing at a memory clinic N = 12 people with selfreported MCI or early dementia diagnosis, 32 SOs of people with (early) dementia To explore caregivers’ experience in decision-making regarding patients’ participation in further diagnostic assessment to confirm cognitive screening results for dementia. Feeling of needing to do something Expected outcomes of the decision on diagnostic testing Perception of symptoms Interaction with HCP Societal factors 80% of quality criteria met
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