Maud Hevink

2 | 23 Table 2. Study designs, methods, findings, and themes related to patient preferences from included studies. Authors (Year), Country Study design Timing of data collection Participants (N = sample size), settings and information on diagnosis* Aims Themes (based on data synthesis) MMAT Birt, Poland, Charlesworth, Leung & Higgs (2019), United Kingdom A qualitative design using individual interviews After deciding on seeking help for memory complaints N = 25 patients with dementia diagnosis N= 9 patients with MCI diagnosis N= 7 patients with subjective cognitive concerns To understand the experiences of people who seek help for subjective cognitive concern and memory loss, including people not referred for further assessment. Feeling of needing to do something Beliefs on the necessity of diagnostic testing Expected outcomes of the decision on diagnostic testing Perception of symptoms The support or wishes of the social network Interaction with HCP 80% of quality criteria met Chrisp, Tabberer, Thomas & Goddard (2012), United Kingdom A qualitative design using a thematic analysis of case studies After memory clinic visit N = 20 SOs of PwMCs, information on diagnosis not provided To identify influences on the decision to consult a HCP for symptoms of dementia. Beliefs on the necessity of diagnostic testing Expected outcomes of the decision on diagnostic testing Perception of symptoms The support and wishes of the social network Interaction with HCP Health status of the PwMC 60% of quality criteria met Koehn, Badger, Cohen, McCleary & Drummond (2016), Canada A qualitative design using individual interviews After receiving a diagnosis (pre-diagnostic experience maximum 4 years ago) N = 29 people diagnosed with dementia, N = 34 SOs To provide a comprehensive understanding of the challenges to securing a diagnosis of dementia, especially among ethnic minority groups. Beliefs on the necessity of diagnostic testing Expected outcomes of the decision on diagnostic testing Perception of symptoms The support or wishes of the social network Interaction with HCP Societal factors 40% quality criteria met

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