| 197 7 38. Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. International Journal for Quality in Health Care. 2007;19(6):349-57. 39. NIHR. Under-served communities 2023 (Available from: https://www.nihr.ac.uk/about-us/ourkey-priorities/under-served-communities.htm. 40. World Medical Association. World Medical Association Declaration of Helsinki. Ethical principles for medical research involving human subjects. Bulletin of the World Health Organization. 2001;79(4):373-4. 41. Braun V, Clarke V. Thematic analysis. 2012. p. 57-71. 42. Brunskill G, Wheatley A, Bamford C, Booi L, Costello J, Herbert J, et al. How do we meaningfully engage stakeholders in developing a best practice approach to post-diagnostic dementia support? Journal of Dementia Care. 2022;30(2):24-7. 43. Engel L, Loxton A, Bucholc J, Muldowney A, Mihalopoulos C, McCaffrey N. Providing informal care to a person living with dementia: the experiences of informal carers in Australia. Archives of Gerontology and Geriatrics. 2022;102:104742. 44. Hale L, Mayland E, Jenkins M, Buttery Y, Norris P, Butler M, et al. Constructing Normalcy in Dementia Care: Carers’ Perceptions of Their Roles and the Supports They Need. The Gerontologist. 2019;60(5):905-15. 45. de Vugt ME, Verhey FRJ. The impact of early dementia diagnosis and intervention on informal caregivers. Progress in Neurobiology. 2013;110:54-62. 46. Connors MH, Seeher K, Teixeira-Pinto A, Woodward M, Ames D, Brodaty H. Dementia and caregiver burden: A three-year longitudinal study. International Journal of Geriatric Psychiatry. 2020;35(2):250-8. 47. Rand SE, Silarova B, Towers A-M, Jones K. Social care-related quality of life of people with dementia and their carers in England. Health & Social Care in the Community. 2022;30(5):e2406-e18. 48. Boots LM, Wolfs CA, Verhey FR, Kempen GI, de Vugt ME. Qualitative study on needs and wishes of early-stage dementia caregivers: the paradox between needing and accepting help. Int Psychogeriatr. 2015;27(6):927-36. 49. Miles L, McCausland BMS, Patel HP, Amin J, Osman-Hicks VC. A systematic review of the provision and efficacy of patient and carer information and support (PCIS) interventions for patients with dementia and their informal carers. Aging Clinical and Experimental Research. 2020;32(12):243948. 50. Hevink M, Wolfs C, Ponds R, Doucet S, McAiney C, Vedel I, et al. Experiences of people with dementia and informal caregivers with post-diagnostic support: Data from the international COGNISANCE study. International Journal of Geriatric Psychiatry. 2023;38(5):e5916. 51. Stephan A, Möhler R, Renom-Guiteras A, Meyer G. Successful collaboration in dementia care from the perspectives of healthcare professionals and informal carers in Germany: results from a focus group study. BMC Health Services Research. 2015;15(1):208. 52. Minkman MMN, Ligthart SA, Huijsman R. Integrated dementia care in The Netherlands: a multiple case study of case management programmes. Health & Social Care in the Community. 2009;17(5):485-94. 53. World Health Organization. Global action plan on the public health response to dementia 2017– 2025. 2017. 54. NICE. Dementia - Quality standard (QS184) (updated 28 June 2019. Available from: https://www. nice.org.uk/guidance/qs184/chapter/quality-statement-4-coordinating-care. 55. Bamford C, Poole M, Brittain K, Chew-Graham C, Fox C, Iliffe S, et al. Understanding the challenges to implementing case management for people with dementia in primary care in England: a qualitative study using Normalization Process Theory. BMC Health Services Research. 2014;14(1):549.
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