| 135 5 Worksheet Page Interviewer Sample Script Comments 2 Demographic screener So let’s start by completing the questions on page 2 of the Handouts. [Interviewer should ask the screener questions and record their answers] Aim Collect consistent demographic details about the people that participate in online or phone interviews Please note them down in a pass word protected file. Explanation The participant may find it easier to follow what we are asking them and provide a relevant answer The participant also can note down their answers but this is not mandatory. 3 Word associations What is Dementia? Ok. Let’s continue with the interview. Today I want to talk with you about dementia, diagnosis and supports that are available for people with dementia. Set up: Please turn to page 3 which has the word ‘dementia’ on it. Can you see the word ‘dementia’ on your worksheet? Activities Exercise: To begin with, I want to understand what the word ‘dementia’ means to you. So, when you see or hear the word ‘dementia’ what words or feelings come to mind? Please pick up your pen and write or draw on the sheet any thoughts or feelings that come to your mind. You can use words or pictures. I’ll give you a minute or two to do that Telephone I will keep quiet to give you time to think and note down answers. Online: I will turn of my microphone to give you time to think and note down answers, you cannot hear me, I will still be able to hear you. [1 min]. Share/discuss ideas: Ok, so now that you have a little time to think could share your ideas with me. What have you written down? [Allow sharing]. Do you have any other thoughts to add? [prompt around emotions, stigma, understanding etc if person needs support] Reflection: OK. So it sounds like the word dementia has different meanings and is associated with different emotions. Clarification: Today we will discuss dementia, how people feel when they are diagnosed and what sort of supports might be useful to help them. When we use the word dementia, we mean a diagnosis associated with memory loss, problems with thinking and reasoning. In addition to communication, personality changes and difficulties with everyday activities of living. The most common cause of dementia is Alzheimer’s disease, but today, we are interested in all types of dementia. Aims Clarifying how the participant think & feel about the word ‘dementia’. Activities Introduce the exercise. Give the participant time to make notes/drawings about their own ideas Give the participant time to share their ideas with you Summarise, provide feedback and allow people to add any further comments
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