| 123 5 participants on Thelma’s thoughts and feelings, rather than encouraging a more open-ended response to the scenario. Interviewer: ‘Please look at this photo, think about what, after these few weeks, could [Thelma] be feeling?’ Participant: ‘I mean, I can’t think about it, because it says here: “Thoughts, [Thelma] feels.” Oh, “What did she do during this time, could she help her, what might help her” …’ PwD3: ‘Well, I see, I see two smiling people who are satisfied with their life, so it all worked and now there are happy people!!!’ Poland, Participant 3 Some participants also did not find the different time points represented in the photo elicitation techniques meaningful. These interviews tended to be shorter, with participants sharing little additional information about the experience of diagnosis over time. For example, responses to the initial timepoint (Thelma’s diagnostic conversation with her doctor) produced consistently meaningful, engaged and strong responses. Interviewer: ‘What would Thelma be thinking and feeling right now?’ Participant: ‘Well, I’ve been in the chair… So, when I’m in the chair, I’m thinking “oh my god, I’ve got dementia”. So, you start, you know, your brain is going around and around thinking “what symptoms did I show? What made them do this?” And that they hadn’t told me.’ Canada, Participant 1 However, the subsequent time points (‘a few weeks later’ and a ‘few months’ later) lacked the same intensity of meaning for some participants. Some did not perceive much difference between the intervals and had problems distinguishing between the types of supports that may be useful a ‘few weeks’ after diagnosis versus after a ‘few months’. Interviewer: ‘Now let’s move a little forward in this story, a few weeks later from this visit, where the doctor made a diagnosis when he told [Thelma] that she had dementia and again a similar question: what can [Thelma] feel at this time? What could she do?’ Participant: ‘Well, what I said. It’s the same.’ Poland, Participant 3
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